JOHANNESBURG - Media personality and motivational speaker Ontlametse Phalatse has passed away at the age of 18.
Her family has released a statement on her Facebook page, saying she passed away at the Doctor George Mukhari Hospital in Pretoria on Tuesday after experiencing breathing problems.
Phalatse was one of two South African girls living with the rare genetic disorder, progeria, and was told she would only live until her fourteenth birthday.
Progeria is a genetic disorder that causes a child's body to age fast.
She was surrounded by her loved ones.
President Jacob Zuma's spokesperson Bongani Ngqulnga says the president is heartbroken.
"The president was most touched by meeting Ontlametse last month. He considered her to be very special. He was impressed by her sharp intellect, warm personality, brilliant ideas and her determination to use her condition to motivate others so that they can achieve their goals, regardless of any challenges."
Phalatse last month met with President Jacob Zuma for her birthday as part of her bucket list of wishes.
They met at the president’s home in Pretoria.
The president says they’ve taken a few steps in helping Phalatse and her family manage her condition.
“They don’t have a house. The foundation, working with the trust, will certainly ensure that that’s a priority and we’ve been doing so for a number of people.”
(Edited by Shimoney Regter)
This article first appeared on EWN : Teen with progeria Ontlametse Phalatse dies